National Data Opt-out Posted or Updated on 7 Mar 2024

There have been posts on social media with false information about opting out of sharing your data with the NHS.

Here's what you need to know.

There is no 30 September deadline for opting out of sharing your data. You can opt out at any time.

NHS Digital will never sell your data.

There are strict rules about how NHS can use your data. It's only shared securely and safely.

Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.

Read the NHS Digital's response to the false information about the national data opt-out: digital.nhs.uk/services/national-data-opt-out/mythbusting-social-media-posts

Your health records contain a type of data called confidential patient information. This data can be used to help with research and planning.

You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.

Your choice will only apply to the health and care system in England. This does not apply to health or care services accessed in Scotland, Wales or Northern Ireland.

This information is also available in other languages and formats: www.nhs.uk/your-nhs-data-matters/manage-your-choice/different-languages-and-formats

For more information or to make your choice please call the National Data Opt Out Centre on freephone: 0300 303 5678 - Monday to Friday 9.00am to 5.00pm (excluding Bank Holidays). This team can assist with using the online service, make or change a choice or print and post a form to you to complete. 

Visit www.nhs.uk/your-nhs-data-matters to make your choice online.